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Care at the End of Life


Selected and rated by
Roni F. Zeiger, MD


Care of the Dying Patient - Merck Manual of Geriatrics
A chapter from Merck's practical handbook on geriatric medicine.
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Patient Information for Seniors - American Academy of Family Physicians
The section on End-Of-Life-Care includes excellent summaries for patients and families on topics such as advance directives, artificial hydration and nutrition, hospice care, and autopsy.
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End of Life Physician Education Resource Center - Medical College of Wisconsin
A comprehensive collection of educational materials and information about end of life issues. Includes research abstracts, full-text articles, and funding and training opportunities. Free registration required.
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Advance Directives For Each U.S. State
Links to downloadable advance directives forms for each state in the U.S.
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Low-Literacy Advance Directives - Institute for Healthcare Advancement
Low-literacy advance directives forms in English and Spanish
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Department of Pain Medicine and Palliative Care - Beth Israel Medical Center
Comprehensive resource for information on pain medicine and palliative care, with a pain multimedia library and links to educational materials for clinicians, and patient and caregiver resources. Includes information in Spanish and Russian.
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Death and Dying Resources - American Association of Retired Persons (AARP)
An annotated list of Web resources compiled by the AARP on death and dying.
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Medicaring - Center for Palliative Care Studies
CPCS implements quality improvement projects in end of life care and offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life.
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VA Nationwide Palliative Care Network
This site from the Veterans Administration includes an online palliative care textbook as well as resources more specific to the VA system.
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The Compassionate Friends - Grief Support After the Death of a Child
A site devoted to helping people cope with the loss of a child. It includes brochures written by people who have experienced the death of a child, provides a collection of links to related sites, and provides chat sessions in which anyone can participate.
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American Academy of Hospice and Palliative Medicine
The American Academy of Hospice and Palliative Medicine is a good starting point for information on hospice and palliative care.
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Growth House
Growth House is portal that provides a browsable and searchable database of Internet resources for life-threatening illness and end of life care.
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Americans for Better Care of the Dying
A coalition of citizens and professionals working to ensure that public policy addresses the needs of individuals and families coping with a fatal illness. The site contains end-of-life and legislative action guides for caretakers and physicians.
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American Pain Society
This site serves as a guide for patients to locate pain treatment facilities and other resources. Also included is a collection of pain-related publications and Web sites for patients and physicians.
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Before I Die
A site constructed to complement "Before I Die," a one-hour Public Broadcasting Service television special aired in April 1997. Glimpses into real life experiences are poignantly presented.
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The End of Life: Exploring Death in America - National Public Radio
A collection of National Public Radio's transcripts from its series on death and dying in America. Includes readings from selected novels, short stories, poems, and spiritual texts.
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Palliative Care Resources and Links - MD Anderson Cancer Department of Palliative Care and Rehabilitation Medicine
List of web resources devoted to palliative care and pain management.
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